Is sudden cardiac death genetic?
Key points. Sudden cardiac death (SCD) is a leading cause of death in Western countries, and a genetic risk of SCD is well established. Rare variants in genes encoding proteins linked with cardiac structure or electrical activity have been associated with the risk of SCD in the young (aged <35 years).
What challenges does the increased availability of personal genetic information pose?
The increased availability of personal genetic information also challenges nurses to understand the ethical issues associated with activities such as informed decision making, informed consent and genetic testing, genetic and genomic research testing protection, maintaining privacy and confidentiality of genetic …
What is the concerns regarding genomics?
11 Issues of confidentiality, stigmatization, and misuse of genetic information are high on the list of concerns, particularly the potential for creating a genetic underclass that may be denied medical insurance as a result of genetic testing and screening.
What are the primary ethical issues involved in genetic research?
Issues of privacy, confidentiality, informed consent, and return of results represent the primary ethical concerns that IRBs and investigators must struggle with in designing and reviewing studies involving the use of genetic information.
Is genetic research ethical?
In a large number of instances, when patients receive the results of genetic tests, they are party to information that directly concerns their biologic relatives as well. This familial quality of genetic information raises ethical quandaries for physicians, particularly related to their duty of confidentiality.
What are 3 ethical issues with the Human Genome Project?
The original issues identified in the ELSI program announcement were: questions of fairness in the use of genetic information; the impact of genetic information on individuals; privacy and confidentiality of genetic information; the impact of the HGP on genetic counseling; the impact of genetic information on …